Monday, January 7, 2013

Missy

The week before Christmas Missy and our dad went back to the NIH to meet with doctors about her cancer.  We learned that her new medication is not working. There is nothing else available to try. They are taking her off all treatments and just placing her on steroids to keep swelling down. After Christmas Missy and our parents met with the local doctors and with Hospice to begin this new stage of dealing with her terminal cancer.

 We are heartbroken. Truly and completely heartbroken. But we are also trying to focus on where we are right now. She is no sicker today than she was before the trip to NIH, we just have more information today. We had a wonderful Christmas as a family and rang in the New Year all together. We will just have to wait and see what 2013 brings, taking it one day at a time and enjoying every moment we have together.

I just wanted to update everyone here on the blog because I know she is on your hearts. And because with this new place we are at, I am not sure how much I will be blogging.  Possibly a lot, possibly none at all.  You may read my grief through these posts, or I may post pictures and act like nothing is happening.  If I am not here as regularly as I used to be, know I am doing what is most important.  If I am blogging about trips to the aquarium, book reviews or funny things Henry says, know that I am just trying to find a small bit of normalcy in this difficult time.  If I blog openly about my grief, please be understanding, which you all always are.

This is harder than I could ever imagine.  For now, our family is spending as much time together as possible.  We are talking and laughing, hugging and kissing and telling each other as often as possible how much we love the other. Someone is always with her. We are all here together, spending time with our Sweet Missy.   Hard days are ahead of us, but for today, we are living in the now.  We are doing the very best we can and are loving each other with the time we are given.  
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24 comments:

  1. Cancer is so unfair.

    My mom, who lost her battle with cancer in 2003 after fighting for almost 5 years, refused to talk about her "end" date or statistics. Instead, she lived life the best she could, and reminded us all that nobody knows when we'll be called home. I can tell that you & your family are doing just that, and encourage you to continue.

    Please know that I think of you, Missy, and your family often. You all are in my prayers and will continue to be as I pray for healing & peace.

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  2. I am so sorry that you and your family have to go through this. Thank you for sharing whatever you need to to get through this. I am abiding with you.

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  3. I feel heartsick to hear this news. Praying for you and your family as you soak up time and memories together.

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  4. Cancer sucks.

    Hugs to you and your family.

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  5. I wanted to delurk today to say that I'm a long-time reader and have been praying for Missy for a long, long time. You are all in my thoughts as you move through the coming weeks and months.

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  6. This breaks my heart! I am so sorry!

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  7. Ive said it once & I will say it again...My heart breaks for your family & I am always here for you!! I am just a short car ride away! Thinking of you & your family.

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  8. I will continue to pray for peace and comfort for Missy and your family. So sorry for this heartbreaking news.

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  9. Oh love. I'm praying for your sweet sister and your entire family. May your heart take snapshots of the togetherness that you're sharing right now. xo

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  10. I am so, so sorry. There just aren't words for how unfair and heartbreaking this all must be. Praying for peace and comfort.

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  11. I'm heartbroken to read this post, Sarah. So glad that you all are treasuring your time together.

    I love what you said about needing the blog to be whatever for you - be as light or as serious as you need. We love you anyway.

    XXX

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  12. I am just so sorry. I don't have words for expressing my sorrow for you and your family and how much I wish this weren't happening to you all; you are in my thoughts. Cancer is such an evil thing. :(

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  13. I am really sorry to hear this Sarah. Keeping you and your family in my prayers.

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  14. Sending prayers for healing and peace for you all.

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  15. I'm truly heartbroken for all of you. I'm glad you have such a strong bond as a family. Do whatever is needed. We'll be here, thinking of you.

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  16. I am praying for you and your family and sweet sister. Sending love and peace. xoxoxoxo

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  17. I am so so sorry. Lots of love to you all, sending you light and love.

    And this blog is your space, we're here for whatever you need.

    xoxo

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  18. Just wanted to let you know that you're in my thoughts. I wish I could do or say more. It's an understatement I know, but it's just so not fair.

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  19. Oh sweetie my heart is broken for you and your family. Keeping you in my prayers. I'll be here reading no matter what you want to say.

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  20. I am so glad Melissa has a wonderful family and friends to support her and each other. Melissa and my life pathes crossed about 3 years ago. She is a wonderful and beautiful person even while having one of her little temper tamtrums! I love her so much; everyone is in my thoughts at this time.

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  21. Oh Sarah, my heart is breaking for you!! I cannot.begin to imagine what you are all going through right now and words seem very empty. But just know that you are all in my thoughts and prayers and most importantly in my heart, always xx

    Amanda xx (from.the family patch - can't seem to sign in properly on my phone)

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  22. This has me in tears. I'm so incredibly sorry. No words can make this better. Please know that I'm here for you, and I will continue to keep Missy and your entire family in my thoughts and prayers. And no matter what you write, I will keep reading. xo

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  23. I'm so so sorry to read this. As someone who has lost a brother, I can say that your closeness with her now will bring you immense comfort later. My heart is with you as you walk this journey. Hugs!

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